Big Hopes

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Kathy Miller

KickAS_Kat

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Big Hopes

I have never been a distance runner - I was a sprinter/hurdler/high jumper/swimmer mostly, so the challenge of seeing if I can run any kind of distance is a big one. As well as AS I also have hypermobility syndrome - a weird but common enough condition. The combination has ended up in them trying to convert me into the million dollar woman - I certainly feel if after 19 orthopaedic ops - 15 of them since 2002. The metalwork in my lower back was specially imported from the US at the cost of £80k (thank you BUPA!) - but what a piece of kit - the screws holding the rods in place have heads that move when I move, so I have better movement than I had pre-op and no leg pain any more : ) I put that op off for 10 years as I could still ski and still walk a decent distance, and that's all that mattered. Now I can walk so much faster and for longer than for years. The last 15 years have been one op after another as I'm pretty good at ignoring what my body is telling me and keep pushing on - life isn't a dress rehearsal! I tore the ACL in my left knee in 2012 while skiing (exactly a year after the back surgery) - I got carried away with feeling good and a short while after that, had a bad fall during which my skis didn't come off. I strapped up the sore knee even tighter and carried on and had three more very similar falls that week as my knee kept giving way. Where there's no sense, there's no feeling ;) A while after that I tripped over a kerb coming out of a concert and ran head first into a brick gatepost then I started losing sensation in my feet and hands and as the weeks went by, that gradually spread. Thankfully everything still works, I just can't feel it working very well. A couple of months later after a full spinal scan, the problem was finally found in my neck where my spinal cord was being compressed by bony bars that had grown across two of my neck vertebrae and in the fall, the spinal cord had been slightly damaged by the bars. In October 2013 they removed the bony bars, then fused the two vertebrae together to hold everything steady. 

I've tried running so many times in the last four years but rapidly develop a banging migraine that stops me in my tracks. I also get pretty bad lower pain back when I run too, but I'm not going to stop trying. I will run again in future because all of you superstars do tougher things every day of the week and every single one of you is an inspiration. You all ran for NASS, and one day soon I hope, I will run for NASS. In the meantime I'll walk and ski and I'll pedal like fury on my exercise bike - fast, slow, long or short, just so long as I stay active I'll be winning :)

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Time flies!!

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Of steps, supporting runners ...

Good afternoon Superstars  Massive massive congrats to everyone who ran last weekend - just absolutely amazing all of you  Also a HUGE THANKYOU for counting your steps to raise awareness of AS on World Arthritis Day on Sunday 12th and for getting the nu...

Sunday October 12th

Hello all you Realbuzz legends  Apologies for not commenting on many blogs for the last two weeks but I have been trying read as many as I can since I got back. So much has happened on Realbuzz in the last two weeks!!! I've been away on holiday to sunny...

A quick catch up and an inspi...

Good morning Realbuzz Superstars! Things have been a bit up and down for me since Oggie Run 2. The euphoria of that fantastic day when so many of you did so many incredible things easily got me over the soreness of Sundays activities and I'm still smili...

Hollywood is good :)

Hey everyone  Bolty just asked me to let you all know that he's heard from HD and he's through the op and doing great! He should be home tomorrow   Kat x  

Challenges for Louie

Hello there all you super special superstars  Late as usual to do my write up of the fabulous Oggie Run 2, but here we go. I don't think there's anything left unsaid about the huge efforts that everyone put into their challenges for Louie or what we ach...

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Bolty Running the Ridgeway Ul...

Didn't want to hijack Marc's blog so thought I'd start a separate one for those not on Facebook. You've probably already seen that Marc has a fantastic pic of Gerry Gerry running this morning on his latest blog - if not, have a look :D    Go go go go go...

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Realbuzz Picnic

Oh what a chilly afternoon it was, but vastly warmed by meeting so many legends. When Hollywood appeared at the wrong side of the lake, we really thought for a minute he was going to swim across!!! Just wanted to post a few pictures of this afternoon an...

Thank You Realbuzz from the O...

Evening you lovely people  I just wanted to say a HUGE BIG ORANGE THANK YOU to all of the fantastic Buzzers who have signed up alongside Gerry and myself to become part of the 'Orange Apples Team' involved in the 'Walk Your A.S. off' campaign. We are on...

Calling all you lovely Buzzer...

Hello all you lovely Buzzers  What a weekend it's been for PB's and terrific training - just so much going on. I haven't blogged for a few weeks as my own news isn't too brilliant, and I don't want to put a damper on things. The first (and very short) r...

I can't stop smiling

I went to the weekly NASS gym session tonight and haven't stopped smiling yet. In my blog last week I described how I'd tried running on the treadmill to see how it felt. In an attempt to reduce the impact on my back but particularly on my neck, I tried...

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Well, this week has seen so many exciting posts, and the Realbuzz spirit is growing ever stronger. The excitement generated by the Snowdon marathon alone has been incredible. The Buzzers will grab Snowdon by the short and curlies later in the year and N...

Happy New Year

Just wanted to wish all of you Realbuzz superstars  A VERY VERY HAPPY AND HEALTHY NEW YEAR May your troubles be small, your PB's be frequent, and your injuries be insignificant. And for anyone coping with injury, facing surgery or who is recovering fro...

Progress report, a bit more h...

It's been awhile since I posted so I thought it was time for a pre-Christmas (just) update and maybe take the time to do more of a backstory at the same time. Feel free to press the escape button at any stage ;) It's been a quiet few weeks for me, but f...

A roller coaster ride, a bril...

I can't believe that it's now over a month since my op, but what a month for Realbuzzers - Amsterdam, York, Snowdonia, Dublin, Salisbury, Mud Runs, Lactic Fallout, New York to name but a few - all epic performances following Hollywood's unveiling of the...

Start of a long road

I can't believe a week has passed already since my neck job. To be honest, I felt far better for the first two days than for the last five, and that makes me feel like a wimp, and that, I don't like!  The surgeon warned me of the pain that would start i...